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November 14, 2003

The Diagnosis

Having now got a detailed description of Jules tumour, as with other info, it's posted here.

Jules has:

  1. Malignant meningioma (temporal fossa, Caverno-sinus, Suprasellar)

  2. Right sided MCA infarct

In 1988 Jules was diagnosed with acute lymphoblastic leukaemia which was treated with chemotherapy and radiation. She also received a bone marrow transplant in the same year.

In 2002 she developed left facial weakness, unsteadiness on her feet, and a tremor affecting the left side and poor memory. Her MRI showed a large middle fossa, right sided meningioma which was partially debulked in April 2003.
She continued to deterioate with regards to her vision and a repeat MRI scan showed an increase in the size of the tumour with deviation of the optic chiasma. She had frontal craniotomy and subtotal excision of the residual meningioma on the 21 August 2003. This was complicated post-operatively with right MCA infarct resulting in dense left hemiplegia and complete right 3rd Nerve palsy. She then developed a large subgaleal collection, CSF confimed infection and she was treated with the relevant antibiotics. She then also developed mild diabetes insipidus and she is currently on DDAVP.

She has regained some power in her left leg, however none in the upper limb. Her speech was affected, however this is gradually improving. She initially had an NG tube which was removed, but replaced when she was sick. She is able to eat soft foods, pureed or chopped up. Her memory has not worsened following her surgery and generally she is not depressed. She has pain in her left side which is relieved to a certain extent with correcting her posture.

Posted by alan at November 14, 2003 2:06 PM

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