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August 31, 2003

She's Got Meningitis!

As Jules said tonight, it's just another thing to add to the list. It's not the serious strain, as it's affecting her meninges, not her blood, and isn't contagious. Phew! But it does explain her rather "rambling" nature the past few days.

Some info on Meningitis:

Meningitis Research Foundation - About The Diseases
Meningococcal disease
Meningitis (cerebrospinal meningitis)
NINDS Encephalitis and Meningitis Information Page

Posted by alan at 11:06 PM | Comments (1) | TrackBack

August 30, 2003

Wooo Hoooo!

Jules is chatting away, seems soooo much more with it than the last few nights. Still has swelling and possible infection, but she's less delirious than the last couple of nights. And she said "Mum". She also seems to have fallen in love with strawberry yoghurt and Patrick, the guy who feed's her it, hmmmm.

She'll be eating normal food, albet mashed up, tomorrow, so things are improving once more.

I've my orders, a comprehensive shopping list, so I'm off to do that tomorrow.

:-D :-D :-D :-D :-D :-D :-D :-D :-D :-D :-D :-D :-D :-D :-D :-D :-D :-D

Posted by alan at 9:48 PM | Comments (1) | TrackBack

All Change!

Spent today doing everything around the house, clean the car, and sort it out.

Now bored, so have played a bit with the weblog. What ya think of the colours?

(BTW if nothing's changed, try ctrl&refresh)

Posted by alan at 1:31 PM | Comments (2) | TrackBack

August 29, 2003

A Meaningless Stream...

Jules is talking no end now, but it's all a mess. Something about Caroline being shit (?), Thursday morning before how much, socks and slippers, and repeating most things you say.

She's also talking in French and Italian. Oh, and a friend's taught her a rude word too.

Confused? Scared shitless more like :(x

Posted by alan at 11:17 PM | Comments (0) | TrackBack

August 28, 2003

Tonight's Word

Jules kept writing:


I don't know, we don't know. Until things move on no-one can say what damage is permanent, and what will go with time.

The doc's are saying it'll be upto 18 months before Jules is fully recovered.

Guess that's 2004 out the window then.

Oh, and this didn't help tonight either - Power cut causes chaos - have just walked in, having spent another night on "Random Rail", the new franchise holders of WAGN.

Posted by alan at 11:50 PM | Comments (0) | TrackBack

Home Tomorrow...

Or at least, last time she would've been.

Posted by alan at 2:34 PM | Comments (0) | TrackBack

August 27, 2003

My First Words...

Jules is now slowly starting to speak, mostly one off words, and mumbles. But tonight she said a complete sentence:

"Life's a bastard!"

Not exactly what I was expecting, but a good sign none the less.

Posted by alan at 10:22 PM | Comments (0) | TrackBack

August 26, 2003

Thank You!

Grinning  <a href=Jules ">
I've just finished another night on the 'phones. Jules is giving the thumbs up to all your messages of support, and hopefully in a few days will be able to give me some words to put up, from the horses mouth as they say!

Big hugs and kisses from us both!

Posted by alan at 9:45 PM | Comments (0) | TrackBack

The Scientific Bit

A bit of a scare this morning, but nothing to worry about, a drain has been plugged in to Jules head to relieve any unnecessary pressure. Job done.

But, and there's always a but...

The registrar and consultant have looked at the CT scan in detail and explained what they think has happened, and the definates and maybe's of Jules ' condition. Click away.

Can't Talk

Possible sore throat, and as the day's go by her voice is coming back. She can say singular words, but the effort is straining her. Most communication is via a pad and pen, which will be a useful record for her when she recovers further.

Can't Stop Peeing

As a result of the removal of the pituitary stalk, Jules is suffering from diabetes insipidus. The disruption of the pituitary gland has caused it to stop producing a substance called ADH (anti-diuretic hormone). ADH is one of many hormones produced by the pituitary gland and causes the kidneys to hold on to free water. When ADH is not produced, the kidneys make abundant dilute urine. If it's not monitored closely her serum sodium will rise and her mental status may be affected more than she normally is. Once she's out of hospital a nasal spray will be the provider of ADH.

No Leftside Movement

After the CT scan today it's now certain that Jules has brain damage. How much, how permanent, is an unknown. But it's likely from the lack of movement down her left side that it's something to do with her motor control for the left. Only time and physio will tell.

In Summary

Jules is going to be on hormones and ADH replacement for the rest of her life. Returning to work I can't see happening before next Easter, if at all. The brain damage will be apparent in the coming weeks as she recovers from the op. Life is going to be hard, but being the positive fighter she is, it's going to take a lot more to knock her back.

Posted by alan at 8:56 PM | Comments (0) | TrackBack

A Little Drowzy

The hospital have rung to say Jules has been a little drowzy over night. A CT scan is being done, and they'd like us to be down as soon as possible to chat to the consultant.

Nothing serious I don't think, but means another day out the office.

Posted by alan at 8:02 AM | Comments (0) | TrackBack

August 25, 2003


Jules ' throat is getting better, and she's able to open her mouth more. To the point yesterday that she can now say some words, although still needs her pen and pad to write things out.

Coz Eee's down it was a short visit so we could get down the pub. Jules was none the too happy about this, screaming, "Smirnoff, Bacardi Breezer, Pub!!", and nearly half way out the bed, asking for her slippers and dressing gown.

As before I think she needs to take her time recovering, and that means in bed, and not down the pub. Besides, the drip lines wouldn't reach ;-)

Posted by alan at 5:09 PM | Comments (1) | TrackBack

August 24, 2003

...and Another Night

Having got back from London it was time to let the hair down and Ian to cheer me up with some Old Town Action!

Drinks, pool, and clubbin' all on order! Pics of the night in the extended bit, click away.

Ian playing pool
Ian "playing" pool.

Ians party trick
Ian's "Pint Glass in Gob" party trick.

More drinks
More drinks please (although not tooo sure what they are?)

Ian's gone...

I'm not far behind...

and disappeared
... Chris is just a smilin' wreck.

and disappeared
... and now Ian's face is melting, a-la Coldplay vid stylie...

Posted by alan at 11:55 PM | Comments (0) | TrackBack

Oh, One Other Thing...

All night she was spelling out by hand:

2 - 5 w - e - d

and writing:

2005 wed

Any clues what she's on about? ;-)

Posted by alan at 10:16 AM | Comments (0) | TrackBack

Another Day...

We went to see Jules last night, having caught up on sleep lost from Thursday and Friday.

She's still not talking. Her left side is completely frozen, and she's unable to move anything that side. Communication is simple, either clicking fingers, thumbs up, and as of last night, notepad and pen. She has now opened her left eye fully, which is a good sign as it suggests movement is slowly returning to that side of the body. She's not eating, everything being given by drip still as she's unable to swallow or open her mouth properly. A side effect is she's passing some very large amounts of wind, much to her amusement!

Words and phrases are back to front, i.e. she writes things like Yoda, e.g., "Much whiring is ear my". Oh, and despite much grunting arguing, I was born in 2001, which makes me a lot younger than I feel!

Frightening for me, she's nothing like the last time. But the doctors assure us that there's nothing to worry about and she'll slowly recover in the next few weeks.

Fingers soooo tightly crossed it hurts.

Posted by alan at 10:01 AM | Comments (0) | TrackBack

August 23, 2003

Time To Eat

Ian and I have just gotten back from a loong day in London seeing Jules. And all I want to do is eat and have a drink.

So, a HUGE quantity of pizza is on order, the Cola's freezing away merrily, and "Harry Enfield & Chums" has just started on UK Gold.

I'll post full details tomorrow, there's too much floating around in my head at the mo'.

Posted by alan at 10:10 PM | Comments (0) | TrackBack

Down London Town

Ian's untimely arrival yesterday mean't a change of plan.

So, we're off to London early to see the sights and buy some cheap books!

Pics of the adventure are in the extended bit, so click away.

Chillin' in Tottenham Court Road
Chillin' in Tottenham Court Road

Catching up on "World Domination - A Beginners Guide"

Ian is not massive, he is Belsize!
Ian's not massive, he's Belsize!

Ian looses his head on the train home
Ian looses his head on the train home...

Posted by alan at 10:03 PM | Comments (0) | TrackBack

August 22, 2003

Time for Bed

Jules mum and younger brother have just got back from visiting this evening. Good news is Jules is now opening her left eye and moving her arm and leg. So that's a good sign that things aren't as serious as could've been.

Ian and I are off to paint the town tomorrow, and pop in and surprise her in the afternoon.

Time for bed now tho!

Posted by alan at 11:16 PM | Comments (0) | TrackBack


Pint of Stella

Sleeping it all off, half way thro' a can, the phone rings,

"Alright Al, what ya upto?"

It's my younger bro, Ian, with a 12 pack of Carlsberg, which, would've been disappointing given he normally frequents the streets of Hull. Except he's ringing me from Stevenage station :-O

Better go and pick him up then :-D

Posted by alan at 6:13 PM | Comments (0) | TrackBack

Brand New Day

Goto Stings new site
Well, having had a looooong night watching and waiting, it's time for Jules to move from ITU back up to the ward. As this takes a bit of time, it's a good point to pop out and get some fresh air. So off to Starbucks.

We get coffee, find a nice comfy chair, and kick back. Music plays in the background, and as our coffees arrive, a track kicks off - Sting's
Brand New Day - well, it is, isn't it ;-)

Posted by alan at 11:05 AM | Comments (0) | TrackBack

The Good, The Bad, & The Ugly

Well, it's all over once more, save the singing. So how did it go:
The Good
Jules has no more tumour around the optic nerves and peturitary gland, hooray
The Bad
It would appear that she's had a stroke, as all movement in the left side of her body has gone. It's hard to say if it's permanent as there were no signs during the operation that it had happened, which is good as this suggests its a more temporary thing rather than a full-on stroke. The surgeon's are saying it's a case of wait and see, so fingers crossed.
The Ugly
If last time was, "10 rounds with Mike Tyson", then this time is KO.

Posted by alan at 7:57 AM | Comments (0) | TrackBack

August 21, 2003

6 1/2 Hours Later...

She's out of theatre and into recovery. Much quieter than last time, so the nursing staff are having an easy time of it. But out and awake, that's what's important, ain't it ;-)

Posted by alan at 5:05 PM | Comments (0) | TrackBack

Ready For Action!

Now, you must understand this was Jules idea, so I have no responsibility for the pics!


The surgical stockings are not the top fashion, but Jules seems to think they'll make it soon!


Posted by alan at 9:00 AM | Comments (1) | TrackBack

August 20, 2003

Pizza Express Please!

Having rushed down for 6pm we've not had chance to grab a bite. And Jules was late for hospital dinners.

Checked in and settled, she asks, "Is it okay if I pop down the pub with my family for a bite?" expecting the answer to be no....

The Ward Sister replies, "Yeap, no worries, just keep off the alcohol..."

WOW :-O Quick, lets get off before Sister changes her mind.

Some piccies:

The family sit and wait for the food!

Inside in the warmth, Jules demolishes one Ham & Cheese, hold the olives...

We've had our fill, now lets get her back before anyone notices she's AWOL ;-)

Posted by alan at 9:22 PM | Comments (0) | TrackBack

We're In!

Phone's just rung, bed's available now, so get our skates on!

The operation will be tomorrow, Thursday, so fingers crossed.

Posted by alan at 2:41 PM | Comments (2) | TrackBack

August 19, 2003

Stand By Your Bed's!

Well, after a quick call this afternoon, it's unlikely Jules will now be going into hospital this week. A lack of beds, and a want to get her in at least a day before the op means it'll more likely be next Tuesday that she goes in.

Big sigh, and plans for the bank holiday weekend resurected

Posted by alan at 6:24 PM | Comments (0) | TrackBack

August 18, 2003

Lets Go Ski!

One of Jules Uncle's has a sking boat, so on Sunday we popped up to Little Paxton for a day on the water. Hot, sunny, and very relaxing, pics of the day are in the extended bit, so click away.

Jules on board and ready to heave-hoo

Jules cousin and partner off on their kneeboards (look's good, but they were dragged under and fell off straight away )

Jules zooms passed, dragging her cousin and partner along...

..whilst me and the dog sit and chill

Posted by alan at 1:26 PM | Comments (0) | TrackBack

August 17, 2003

Another Wedding, Another Party!

Well yet another couple we know have gone and tied the knot. But more importantly, it's another excuse for a party :D

Pics in the extended bit, click away.

Sy & Jules relaxing pre-disco.

Jules on the dancefloor, photographer drunk :D

Jules sticking out her tongue, for a change.

Jules stuffing her face with chicken drummers.

Posted by alan at 8:28 AM | Comments (0) | TrackBack

August 16, 2003

A Round of Golf

Never played before, but that, it seems, doesn't handicap you when playing with everyone else from work

Pics in the extended bit, click away







Posted by alan at 8:30 AM | Comments (0) | TrackBack

August 15, 2003

We're Going In...

Dr Thorne rang today and all things going to plan Jules will be in on either Tuesday for a Wednesday op, or Wednesday for a Thursday op.

Blimey :-O She's going next week!!

Posted by alan at 8:21 PM | Comments (0) | TrackBack

August 13, 2003

More Eye Opening Info

Surfing the web for answers, information, reasons, etc... Found a few interesting sites on optics and vision:

eMedicine - Skull Base Tumors Article by Grant P Sinson, MD

Posted by alan at 5:15 PM | Comments (0) | TrackBack

August 10, 2003

Chicago Rocks... literally!

Well, after the news of Friday it was time to take Jules mind off things. So with the help of my younger bro, Ian, we dragged her off to Chicago's in the Leisure Park.

Pics below

Ian remains undecided on what to wear out....

Ian hits the dance floor, Monty Python stylie

Jules shows 'em how to dance

Another round please, kind sir ;-)

The drink is starting to effect our vision

Posted by alan at 11:51 AM | Comments (0) | TrackBack

August 8, 2003

Back in Stevenage

Well, after the news a few hours ago, it's down the pub to forget and chat.

Pics below

We'd already started in the Rat & Parrott:

So it was only natural we'd finish off in the Old Town of Stevenage...

A quiet one outside the Marquis...
Jules well on her way to relaxation.

The next few weeks are going to be hard, so it's good we managed to chill out. Let's see what we can do tomorrow night ;-)

Posted by alan at 7:01 PM | Comments (0) | TrackBack


Well, we now know the reason for Jules vision problems. The tumour is growing still, and is putting pressure on the optic nerves going to both eyes. So, it's back to hospital for another op.

There are risks, she might loose her sight all together. But the consultant's said if we don't do anything her sight will go anyway.

So, but of a bugger really. Wasn't expecting to have to be going back to hospital soo soon. Now looks like the next couple of weeks instead.

Off down the pub with my younger brother, Ian, and her younger brother, Chris, to relax and let it sink in...

Posted by alan at 6:51 PM | Comments (0) | TrackBack

August 6, 2003

Off to London Friday

Well, after chasing around, Jules has an appointment on Friday to discuss the scan and her lack of vision.

Problem is, my younger bro is down. Sooooo.....

He and me will pop in the local Rat & Parrott whilst Jules goes to her meeting.

Sorted :-D

Posted by alan at 1:45 PM | Comments (0) | TrackBack

August 4, 2003

Surf's Up!

Well, the car club forum's crashed, so I've suddenly found lots of spare time to surf around looking at side effects of Jules hormone treatment. And...

Side Effects of Cortisone Treatment

Note the comments about high blood pressure(), blurred vision (), oh, and more importantly, change of character.

Hopefully this explains her lack of vision. We'll wait and see what the experts say.

Posted by alan at 11:27 PM | Comments (0) | TrackBack

August 1, 2003


Well, if you've been asleep or in hibernation round our way, you'll not know about the big concert. And if you are in and around Knebworth you'll know that trying to escape Stevenage at this precise moment in time is nigh on impossible.

Why everyone didn't expect this I'll never know. It's simple maths. There are 70,000 people in Stevenage, moving around, and we've now an additional 120,000 descending on the far southern corner from every direction.

Chaos? Nahh, that was back in January when it snowed for a couple of minutes....

Posted by alan at 2:38 PM | Comments (0) | TrackBack

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